Support & resources

Long Covid Support

Long Covid Support, has offered a lifeline for many, with its warm, well-moderated and inclusive community, and regular support calls on Zoom.

Long Covid Support: Scotland

Another affirming, inclusive and friendly Facebook group, but covering the unique experiences of people living with Long Covid in Scotland.

Body Politic

Body Politic are famed for their inclusive and friendly Slack group, and for being an essential platform for patient-led research.

#MEAction Long Covid group

Some with Long Covid have symptoms of ME/CFS, including post-exertional malaise. This group can support you to manage these symptoms.

Long Covid Physio

Run by physiotherapists with Long Covid, Long Covid Physio provide multiple high-quality resources on rehabilitation and pacing.

The Thistle Foundation

Based in Edinburgh, the Thistle Foundation can help people with Long Covid and other chronic illness to manage their conditions holistically.

Breathing Space

Breathing Space is a Scottish charity supporting people who are low, anxious or depressed. Call their helpline on 0800 83 85 87.

Mind

Mind provide information and support, including peer support and helplines, for people struggling with their mental health.

Fightback4Justice

Fightback4Justice is a non-profit organisation providing specialised, expert advice and help on various welfare benefit claims.

PoTS UK

People with Long Covid often describe symptoms of ‘Postural Tachycardia Syndrome’. PoTS UK have multiple resources for understanding this condition.

POTS Support Group UK

Unrelated to the charity, a popular and carefully-moderated support group to find answers on Postural Tachycardia Syndrome.

Mast Cell Action

Mast Cell Activation Syndrome, or MCAS, has recently been linked to Long Covid. This charity can support you to navigate diagnosis and treatment.

Chest Heart & Stroke Scotland

CHSS have been key in the Scottish campaign for Long Covid support and services. Call their advice line nurses on 0808 801 0899.

Scottish Opera Workshops

The Scottish Opera Breath Cycle workshops including singing and songwriting classes for people with Long Covid.

Balance Menopause

Balance Menopause provide trans and non-binary inclusive information and support on perimenopause and menopause.